 | | |
| | |
|
Spaces home  A Mother's StoryPhotosProfileFriendsMore |  Tools   |
A Mother's Story"For I will restore health unto thee, and I will heal thee of they wounds, saith the the Lord..." Jeremiah 30:17
|
|||||||||||||||||||||||||||||||||||||||||||
Camp Brigadoon will be a year-round facility in Nova Scotia to nurture young people with chronic illness through collaboration, research, experiential learning and fun. You can help.
|
MRI tomorrowTomorrow Lucas has his first MRI post treatment. I actually feel ok. I think I released all of my tension and worry today. Kim's funeral was this afternoon. It was a beautiful celebration of her life and the amazing person she was, but it was VERY emtional. There were messages for her from her four children that were so moving. Her wonderful son Derek brought everyone to tears talking about his "mommy". Oh how she will be missed by her family and friends. And by me.
Lucas had a few episodes of vomiting yesterday - one at the IWK and one in bed last night. I really think that the Septra he takes is upsetting his stomach so I am going to talk to the oncologist tomorrow about it. He takes the septra as a preventative for a pneumonia that immuno suppressed people are susceptible to. I spoke to our FCC and there is an aerosol option but it will mean a trip to the IWK once a month. He has to take the antibiotic until September 11. I only gave him a quarter of what he was supposed to get today and he has had no vomiting.
The optho appointment went well. His distance vision is great and his eyes look healthy. The doctor did write a prescription for a pair of reading glasses but it is very mild. We will try them for reading at home at first. He has been slightly farsighted since birth because of the prematurity.
Thanks for the prayers for No Evidence of Disease on his MRI.
Upcoming MRILucas will have his first MRI post treatment this week. I'm trying not to get too anxious - he has been feeling good and I don't really have any reason to worry. There has been some morning vomiting but I am attributing that more to the fact that he hasn't received his night feeds and his reflux has been acting up. On Monday he will have an opthamology appointment. Wednesday he sees the oncologist, has his hearing test, has his kidney function test, and then in the afternoon has his MRI. On Thursday he will have his first appointment with endocrinology and we will get the results of his MRI. Please pray for NED.
My heart is heavy this week as a friend and one of the most beautiful people I know is nearing the end of her time here on earth. Her name is Kim and she was my boss for a little over a year. I have never worked for anyone so kind and fair, and she touched my heart. She had to go on medical leave because of the return of her cancer just a few weeks before Lucas' diagnosis. She has been battling this for 8 years with dignity, strength, and courage. She is only in her early 40s and has three children, a step daughter and a loving husband. I'm praying for strength for them all at this most difficult time.
Crystal PalaceFun!!! That is the word for Crystal Palace. We took Lucas and my niece Kayla to Crystal Palace in Moncton, NB for a couple of days of fun. It is an indoor amusement park attached to a the Ramada Hotel. It is next to Champlain Place Mall. So there is lots to do. We arrived Tuesday evening. Our room opened to the pool so the kids wanted to go in right away.... of course.
Wednesday was our day in the park. The kids had so much fun. The highlight was the roller coaster. Kayla LOVED it. Lucas liked it too but was interested in other rides. Staying at the hotel was great because we could go back to the room and rest when the kids got tired. We made a trip to the mall to check things out and have some lunch. The kids spied Toys R Us so we went in for a quick peek. Of course peeking meant buying something for each of them.
Thursday was check out day. We went up to Magnetic Hill to check it out. I don't get all the hype and it certainly seemed to me that the only thing that made us roll up the hill. They have a little butterfly place that was really nice to visit. They were beautiful to look at. On the way home we stopped at the Springhill Miner's Museum. Lucas really likes gems and stones so I thought he would be interested in seeing a coal mine. They enjoyed it although Kayla got a little scared in the mine when they turned the lights off.
So overall a great few days with lots of photos to caputre the memories. I can't wait to start scrapbooking the trip.
SharingSomething else I just had to share.
I caution you... this is the reality of the life and death of a child with cancer.
A year ago today....I decided to look back and see what was going on with Lucas a year ago today - it is amazing how quickly we move on and the details fade. Below is most of the entry...
We've spent the last few days at home. Lucas has been very quiet and has spent most of his time in front of the tv. Not only is he acting tired, he looks tired. His eyes look so weary. I'm glad that he is resting as his little body has been through so much with 30 radiation treatments. He is finally starting to get his appetite back. We stopped the nighttime feeds last week and he has slowly been gaining appetite back. It is so good to see him sit down and eat an entire bowl of cereal or have a plate of eggs. That seems to be his favourite food right now - Daddy's scrambled eggs. Apparently mine aren't fluffy enough ;O. He is off for bloodwork this morning. Randy took him because last week when I took him he got so upset. He seems to be braver for daddy than for mommy. We've come a long way since then. Instead of recovering from the end of radiation Lucas is recovering from his final chemo - and doing very well. He still tires more easily than other kids but he is able to a lot including several swims a day in the pool. His appetite is still an issue but I think that he is starting to recover. We haven't completely eliminated the night feeds, but he is only getting them a few times a week. As for the needles - well he is no longer nervous. I think they should use him to make a video for other kids to help them with their fears. He is a PRO!!!!! The year has gone by so quickly in many ways. And we are thankful for so much!!!!
I've been moved by the faith of these bloggers.
|
||||||||||||||||||||||||||||||||||||||||||
|
|
Profile
Blog
Guestbook
Photos
Lists
Friends
